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Marsul Hemofiliei 2011 Bucuresti



In data de 16 aprilie 2011, a avut loc in Bucuresti, marsul hemofiliei, un nou semnal de alarma tras de societatea civila, pacienti cu hemofilie, sustinatori si prieteni. S-a dorit a fi un mars de sensibilizare – un mars al luminii, un mars al sperantei, un mars al solidaritatii. Marsul a durat o ora si a inceput de langa Ministerul Sanatatii si s-a incheiat in Cismigiu. Eveniment sustinut de Novo Nordisk

 

18 aprilie 2011

Hemofilia, boala rara



"Pacientii bolnavi de hemofilie care beneficiaza de o medicamentatie corespunzatoare pot duce o viata normala. In caz contar, bolnavii risca sa capete un handicap locomotor major. Fondurile alocate DE Ministerul Sanatatii situaza Romania pe ultiumul loc in Uniunea Europeana. Cu ocazia Zilei Internationale a Hemofiliei, asociatia Romana de Hemofilie trage un semnal de alarma si cere reinfintarea unui program national, dar si suplimentarea bugetului.


Principalul simptom al hemofiliei il reprezinta aparitia unei sangerari anormale.Homofilia este o boala rara transmisa pe cale genetica. Medicamentele costa foarte mult, iar Ministerul Sanatatii aloca fonduri insuficiente.in judetul Timis 100 de persoane sufera de hemofilie. La nivel national, insa peste 1600 de persoane se afla in aceasta situatie."

de Marcela Sferlea (analogtv) citeste articolul
 


19 Martie 2011

10 in tratarea hemofiliei la Timisoara



"10 ani de munca in slujba bolnavilor de hemofilie din Zona de Vest si din toata tara . 10 ani in care la Timisoara functioneaza unicul compartiment de Chirurgie Osteoarticulara al hemofilicilor din Romania. Hemofilia este o boala care se manifestă printr-un deficit de factor de coagulare. Doar barbatii pot suferi de aceasta boala, pe cand femeile sunt purtatoare."

de tvmedicala citeste articolul

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  • Vizitator (Delajurus)

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  • Vizitator (Delazan)

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  • Vizitator (Zakutniaya Nataly)

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    Dear Ladies and Gentelmen!
    I am, Zakutniaya Natalya, a mother of 12 years old boy Zakutniy Andrew, who lives in Ukraine and has got a Haemophilia B.
    He together with his father are going to organize a cycling track from Mukachevo(Zakarpatskaya region) to Berlin ( 1250
    km long) We want to attract attantion to the problem of such sick children in the world and are asking for your help!
    Please, be so kind to repost the information and help my son to realise his dream. We need about 6000 euro for this trip
    including medicine,equipment,bikes,helms and so on. I will be very greatfull for any help from your side.
    We have got a site -zakutniy.com
    Plus all TV chanels gave an information about our project ( chanel 112 in Ukraine dated 29.05.2016)
    My contact number is +38 098 341 50 44
    my skype a.zakutniy1
    our site is zakutniy.com
    Nataly Zakutniaya

    urch die Weiten– zum Traum!
    > > > Hallo, ich heiße Andrej!
    > > > Ich bin 12 Jahrealt. Ich mag Paläontologie, Schwimmen, Biathlon und Radsport.
    > > > Mein Traum ist Paläontologe und Olympiasieger zuwerden!
    > > > Ich leide anHämophilie (Störung der Blutgerinnung).
    > > > Um eine aktiveLebensweise zu führen, brauche ich regelmäßig sehr teure Medikamente.
    > > > Bitte helfen Sie mir bei Erfüllung meines Traumes!
    > > > Meine Webseite: zakutniy.com
    > > > Schritt 1: Radtour von Mukatschewenach Berlin (Museum für Naturkunde der Humboldt-Universität), Entfernung– 1250 km.
    > > >

  • Vizitator (Zakutniaya Nataly)

    Permalink

    Dear Ladies and Gentelmen!
    I am, Zakutniaya Natalya, a mother of 12 years old boy Zakutniy Andrew, who lives in Ukraine and has got a Haemophilia B.
    He together with his father are going to organize a cycling track from Mukachevo(Zakarpatskaya region) to Berlin ( 1250
    km long) We want to attract attantion to the problem of such sick children in the world and are asking for your help!
    Please, be so kind to repost the information and help my son to realise his dream. We need about 6000 euro for this trip
    including medicine,equipment,bikes,helms and so on. I will be very greatfull for any help from your side.
    We have got a site -zakutniy.com
    Plus all TV chanels gave an information about our project ( chanel 112 in Ukraine dated 29.05.2016)
    My contact number is +38 098 341 50 44
    my skype a.zakutniy1
    our site is zakutniy.com
    Nataly Zakutniaya

    urch die Weiten– zum Traum!
    > > > Hallo, ich heiße Andrej!
    > > > Ich bin 12 Jahrealt. Ich mag Paläontologie, Schwimmen, Biathlon und Radsport.
    > > > Mein Traum ist Paläontologe und Olympiasieger zuwerden!
    > > > Ich leide anHämophilie (Störung der Blutgerinnung).
    > > > Um eine aktiveLebensweise zu führen, brauche ich regelmäßig sehr teure Medikamente.
    > > > Bitte helfen Sie mir bei Erfüllung meines Traumes!
    > > > Meine Webseite: zakutniy.com
    > > > Schritt 1: Radtour von Mukatschewenach Berlin (Museum für Naturkunde der Humboldt-Universität), Entfernung– 1250 km.
    > > >

  • Vizitator (Amy)

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    link Besrt Regards!

  • Vizitator (Becky)

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    tymczasem ależ włosy

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